Bridging Gaps in Care for Autistic and ADHD Adults with Eating Disorders

The study aims to highlight the unique needs of autistic and ADHD patients with Bulimia Nervosa (BN) or Binge Eating Disorder (BED); propose service adaptations to improve patient outcomes; and lay the groundwork for future neurodivergent-sensitive research and interventions. By bridging these gaps in care, this project will contribute to more inclusive, effective, and patient-centred approaches within eating disorder services.
Lauren Makin
Autism and ADHD are significantly overrepresented in individuals with eating disorders, but their unique needs often go unmet, leading to greater illness severity and poorer treatment outcomes. This project aims to address this critical gap, by conducting an in-depth needs assessment of autistic and ADHD adult patients with Bulimia Nervosa or Binge Eating Disorder, their carers, and their clinicians, to inform future treatment adaptions for these individuals.
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Previous research in autistic patients with anorexia nervosa have demonstrated the benefits of tailored treatment approaches, with the PEACE pathway improving satisfaction for patients, carers, and clinicians, while reducing treatment duration and costs. However, bulimia nervosa (BN) and binge eating disorder (BED), which together account for nearly half of all specific eating disorder cases, require distinct interventions. The experiences and treatment needs of autistic and ADHD patients with these conditions remain critically under-researched, leaving patients, carers, and clinicians unsupported.
This study seeks to understand the experiences and treatment needs of autistic and ADHD adults with BN or BED and identify opportunities for service improvements. Through semi-structured interviews with patients, carers, and clinicians, the project will explore how autism and ADHD influence the development, maintenance, and treatment of BN and BED. It will also assess the challenges faced by carers and clinicians in providing effective support.
The study aims to highlight the unique needs of autistic and ADHD patients with BN or BED; propose service adaptations to improve patient outcomes; and lay the groundwork for future neurodivergent-sensitive research and interventions. By bridging these gaps in care, this project will contribute to more inclusive, effective, and patient-centred approaches within eating disorder services.
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